At only 13, she has felt worthless. After all, Ella Marquette's health insurance company recently denied her private duty nursing services.

(page 33) 1,800 years ago, the Roman artists may not have been able to identify what would cause these abnormalities, but today, doctors know the grouping of features as Crouzon Syndrome.

have been found in patients with Jackson-Weiss syndrome, in which the skull, face, and feet may be deformed, and another similar inherited disorder, Crouzon syndrome. One of the hallmarks of both ...

Standout tells the powerful story of Ben Kjar, born with Crouzon Syndrome, a rare craniofacial disorder. From birth, doctors warn that his life will be overshadowed by limitations. Ben yearns for ...