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Mum doctors called ‘lanky’ shares journey with rare condition causing long limbs and hollow face
Since 2020, she has been posting about Marfan syndrome on TikTok under the handle @zoelr92 to help raise awareness and has found a community she can relate to – she now has more than 22,500 ...
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Texas Children's patient goes viral watching Rice baseball from window
This month happens to be Marfan Syndrome Awareness month, and Kirby will be back in Houston on March 2 for the annual walk to raise money for the Marfan Foundation, which supports research and ...
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Effectiveness of ACE inhibition in patients with Marfan's syndrome on β-blockade
The standard treatment for the connective tissue disorder Marfan's syndrome (MFS) is β-blockade, aimed at reducing aortic wall stress. Angiotensin II type 1 and 2 receptors (AT 1 and AT 2 ...