Twins Pablo and Julio Delcid were told they needed open heart surgery related to Marfan syndrome the same day their mother ...
The standard treatment for the connective tissue disorder Marfan's syndrome (MFS) is β-blockade, aimed at reducing aortic wall stress. Angiotensin II type 1 and 2 receptors (AT 1 and AT 2 ...
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Mum doctors called ‘lanky’ shares journey with rare condition causing long limbs and hollow faceAlong with everyone in her family, Zoe also has Ehlers-Danlos syndrome – a condition which causes flexible joints and stretchy and fragile skin, which, combined with Marfan syndrome, means she ...
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