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When my friend Michelle and I started a volunteer group, we looked forward to giving back to the community with our free time. What we didn’t anticipate was how deeply we’d become involved in a cause ...
For many years, cystic fibrosis took a toll on my mental health — long before I was diagnosed. But over time, I began to find meaning in small moments, slowly rebuilding after breaking down. It’s been ...
The digestive system includes all the organs involved in digesting the food you eat and absorbing the nutrients. This is also called the gastrointestinal (GI) system. Some of these organs make up the ...
The San Diego and Hawaii Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get ...
Food insecurity is a widespread problem that also touches the cystic fibrosis community. I should know — I have experienced it myself and had to accept government assistance to buy food.
Even though Trikafta saved my life, I am still dealing with the emotional trauma of being so close to death and missing the person I was before I got so sick.
The latest trends in the health of people with cystic fibrosis who participate in the Patient Registry have been published in the 2017 Patient Registry Highlights Report.
The U.S. Food and Drug Administration approved the use of lumacaftor/ivacaftor (Orkambi®) today for children with cystic fibrosis ages 2 to 5 who have two copies of the F508del mutation.
BETHESDA, Md. -- Today the Cystic Fibrosis Foundation unveiled its Path to a Cure, an ambitious research agenda to deliver treatments for the underlying cause of the disease and a cure for every ...
My service dog, Jasper, and I relocated across the country and began to find our footing in our new home just before devastating forest fires started spreading around the area. Now, I feel more ...
The Cystic Fibrosis Foundation recently announced that there are almost 40,000 people living with CF in the United States. Not only are there more of us with CF, but we are now living longer. Based on ...
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