For a doting parent, the first weeks of school for a child with additional needs take on their own special focus.

A Mid-Michigan family is raising money to help their 6-year-old boy with a rare genetic disorder. After spending a few months looking for action figures and fun items, Kristin Emeott spent $500 and ...

"Angelman Syndrome is a neurogenetic disorder," said Weston's mother Felicia Warner. "It affects a lot of different things. It affects their balance, a very high percentage has seizures ...

Laughter fills the consultation room whenever Lucas Oon, 17, is with the team managing his care – pediatric neurologist ...

Proficio Capital Partners LLC bought a new position in shares of Anavex Life Sciences Corp. (NASDAQ:AVXL – Free Report) in ...

From her mother’s perspective, Allison Girouard is an activist in her own right. Although it’s not easy for Amy Girouard-Crush’s daughter to communicate, Allison often “speaks out about ...

Hundreds of people are expected to help shine a light on rare illnesses by taking part in the Rare Disease Fun Run on Sunday, ...

When Ms. Liu, a cancer patient, picked up a box of medication at the hospital pharmacy, she felt an overwhelming sense ...

Ionis has committed to a phase 3 programme for its antisense therapy for rare genetic disorder Angelman syndrome, just weeks after Biogen decided against exercising an option to license the drug.

Cairns fun run organiser Meagan Cross, whose daughter, Molly, was diagnosed with genetic disorder Angelman Syndrome, said the event was a great way to bring the community together and support ...

Learn more about whether Kymera Therapeutics, Inc. or Ultragenyx Pharmaceutical Inc. is a better investment based on AAII's ...

Earlier this week, Mayor Quinton Lucas released a proclamation on behalf of the City of Kansas City, dedicating Feb. 15 as a day to recognize those suffering from Angelman Syndrome (AS ...