Independent Record4h
'The Life of Riley': Helena mother's book chronicles family's battle with Duchenne muscular dystrophy
Despite the obstacles, Riley Herrera had a life filled with family, sports, travel, faith and hope before his death on Nov.
Muscular Dystrophy News5d
To a parent, the years always seem too short
Columnist Betty Vertin has learned that as a parent, she's finding the years with all her children, including those with DMD, too short.
Sunday World3h
Boy (7) with rare condition flies to US for testing as ‘not enough’ treatment in Ireland
A seven-year-old boy from Dublin is on his way to California to undergo testing after being diagnosed with a rare condition last year.
BioSpace9d
Duchenne Muscular Dystrophy Space on Cusp of Pivotal Era
While the last decade has brought considerable progress for patients with DMD, substantial unmet need remains. Several ...
KCLR96FM6h
A Kilkenny family is on a mission to raise €4 million to save their 4-year-old son’s life
A Kilkenny family is urgently raising €4 million euro for life-saving treatment for their 4-year-old son. William Jonathan Moore, who was diagnosed with Duchenne Muscular Dystrophy (DMD) in 2024.
biopharma-reporter8d
Roche’s Elevidys demonstrates significant benefits for DMD patients in Phase 3
The gene therapy improved motor functions in children with Duchenne muscular dystrophy two years after treatment ...
Managed Healthcare Executive12d
FDA and EMA Accepts Applications for New Nusinersen Regimen
An investigational higher dose of spinal muscular atrophy drug nusinersen gains attention as the FDA and European Medicines ...
PMLiVE8d
Roche/Sarepta announce two-year results for Duchenne muscular dystrophy gene therapy
Roche and Sarepta Therapeutics have shared positive top-line results from a late-stage study of Elevidys (delandistrogene ...