News

Evrysdi treatment is safe and effective at improving or stabilizing motor and lung function in adults with SMA for up to 2 ...
Columnist Sherry Toh explains how her doctors demonstrated the correct way to provide a supportive environment for LGBTQ+ ...
Tyler, who has SMA, shares how smart home technology helps support his daily routines, independence, and overall quality of ...
A trip to England with her friend of 30-plus years prompts columnist Connie Chandler to give thanks for kind friends who ...
Buckle up, it's going to be an incredible ride, columnist Helen Baldwin says in a letter to her 13-year-old self.
Treatment with salanersen slowed neurodegeneration and improved motor function in children with SMA in a Phase 1 trial, ...
Living with SMA isn't just about survival, says columnist. There's also the emotional weight of preparing for the next crisis ...
Learn what you need to do to have a fun, safe, and stress-free day at an amusement park when you have spinal muscular atrophy.
Many SMA patients continue to see gains in motor function with long-term Spinraza treatment, a real-world study from Switzerland reported.
Lexi and Eric, who both have SMA, grew up together and fell in love — building a life full of humor, heart and figuring it out as they go.