Marfan syndrome affects your connective tissues, which provide support for your bones and organs. Learn about the symptoms and treatment options.

A Person With Marfan Syndrome On TikTok Wants Horror Movies To Stop Exploiting His Disability. ... having disproportionately long extremities (arms and legs) and digits (fingers and toes), ...

Since 2020, she has been posting about Marfan syndrome on TikTok to help raise awareness and has found a community she can relate to. She now has more than 22,500 followers and her most popular ...

Marfan syndrome affects the bones, ligaments, eyes, heart, and blood vessels. People with Marfan syndrome tend to be tall, have extremely long bones, and thin "spider-like" fingers and toes.

Zoe Ridgway was diagnosed with Marfan syndrome at the age of 12. ... She also has size six feet, unusually small for someone of her height, and a 5ft 10in arm span. open image in gallery.

Phelps may not have suffered from Marfan syndrome but he mentioned it in his book and people began talking about it. In his autobiography Michael Phelps: Beneath the Surface, Phelps described his ...

At 27, she lives with Marfan syndrome, ... Patients are often tall and lean, with long arms, legs, fingers, and toes. The syndrome can affect the body’s largest artery, the aorta.

Identical twins with Marfan syndrome receive matching heart surgeries. Pablo and Julio Delcid, twin brothers from New Jersey, share their experience after going for surgery at the same time. Dr ...

People with Marfan syndrome tend to be thin and tall, with very long arms, fingers, legs, and toes.‌ Ehlers-Danlos syndrome. This is a group of connective tissue disorders.

Schreiber High School senior Mazzy Sass is working to raise awareness about Marfan Syndrome, ... 2021, I went to sleep standing at 5-foot-7 inches and woke up the next morning at 5-foot-11.