Evrysdi treatment is safe and effective at improving or stabilizing motor and lung function in adults with SMA for up to 2 ...

Learn what you need to do to have a fun, safe, and stress-free day at an amusement park when you have spinal muscular atrophy.

Columnist Sherry Toh explains how her doctors demonstrated the correct way to provide a supportive environment for LGBTQ+ ...

A trip to England with her friend of 30-plus years prompts columnist Connie Chandler to give thanks for kind friends who ...

Treatment with salanersen slowed neurodegeneration and improved motor function in children with SMA in a Phase 1 trial, ...

Tyler, who has SMA, shares how smart home technology helps support his daily routines, independence, and overall quality of ...

Living with SMA isn't just about survival, says columnist. There's also the emotional weight of preparing for the next crisis ...

Buckle up, it's going to be an incredible ride, columnist Helen Baldwin says in a letter to her 13-year-old self.

Transcript The standard of care is that patients come in every six months. I think that is changing. And so my clinic patients haven’t necessarily challenged me on it, but I also try and recognize ...

Managing SMA requires more than just medical appointments with one specialist — it takes a well-rounded team. In this video series, two doctors and a person living with SMA explore what makes a ...